Really overdue to update this thing... I think I will challenge myself to post every day until my next surgery is scheduled.
Yesterday I went to meet a new (to me) endocrinologist. I'm hoping that she will be someone good to work with. She listened, was baffled by my need to avoid things that would prevent me from getting a diagnosis but make me feel better, and was still willing to go forward for now. She ordered a lot of labs and as soon as I get those done I'll make my next appointment with her.
As things stand right now we're moving forward to another pituitary surgery. It's really the only option that I have unless I want to go on with the way things are. I'm looking into seeing if I can get a doctor to do some additional labs that are really only for research purposes but might answer some questions that have no answer right now. Of course there's always the chance that it will just confuse everything more. Yay me.
Next up is this test that is kind of like an angiogram but not at all like an angiogram. They'll insert catheters into my femoral vein at the groin on both sides and thread those catheters up to an area behind my eyes called the inferior petrosal sinuses. If you're bored or really interested you can read more about it here: BIPSS
The last time I had this done the radiologist was not very experienced (the word liar comes to mind) and he was very irresponsible with the amount of radiation I was exposed to. I experienced mild radiation burns in two areas and my hair fell out. The doctor that will be doing it this time has more experience. He also nearly jumped out of his chair when I told him how much "focused fluoroscopy time" I was exposed to. It was nice to see someone not try to pretend that something I knew was ill-advised was okay.
In the meantime the next thing I'm to do is see a cardiologist because my blood pressures have been doing some disconcerting things of late... on top of the chest pains and feelings of irregular heart beats that I've been trying to ignore for years now because the problems are intermittent and previously they were unable to find a cause.
And today... the hot water heater quit. So we'll be dining out (yay! no dishes to wash!) until that fixed and going to the gym to take showers I guess... I mean, who needs a shower? Microwave sponge baths!